Alone, we couldn't do our best for ill children, so we're linking up with Great Ormond Street

Any new partnership is a challenge, but at Sparks medical research charity, we know we need to change to create bigger pots for research grants

At one of our flagship fundraising events a few months ago, Heather and Andrew shared the story of Tom, their son who died three years previously, aged just 17 month, from the cruel and rare disease Krabbe.

When Tom received his diagnosis, the family was told there was no treatment available that could stop, or even slow down, the disease. Our event fell on the anniversary of them finding out he had just days left to live.