Article 30CE9 Warnings over shock dementia revelations from ancestry DNA tests

Warnings over shock dementia revelations from ancestry DNA tests

by
Robin McKie Science Editor
from on (#30CE9)
Companies have been told to accept moral responsibility and provide counselling for people who inadvertently discover health risks

People who use genetic tests to trace their ancestry only to discover that they are at risk of succumbing to an incurable illness are being left to suffer serious psychological problems. Dementia researchers say the problem is particularly acute for those found to be at risk of Alzheimer's disease, which has no cure or effective treatment. Yet these people are stumbling upon their status inadvertently after trying to find their Viking, Asian or ancient Greek roots.

"These tests have the potential to cause great distress," said Anna Middleton, head of society and ethics research at the Wellcome Genome Campus in Cambridge. "Companies should make counselling available, before and after people take tests." The issue is raised in a paper by Middleton and others in the journal Future Medicine.

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