Article 43MWK Woman who inherited fatal illness to sue doctors in groundbreaking case

Woman who inherited fatal illness to sue doctors in groundbreaking case

by
Robin McKie Science Editor
from on (#43MWK)
Legal action over non-disclosure of father's Huntington's disease could lead to huge changes in patient confidentiality

Lawyers are bringing a case against a London hospital trust that could trigger major changes to the rules governing patient confidentiality. The case involves a woman who is suing doctors because they failed to tell her about her father's fatal hereditary disease before she had her own child.

The woman discovered - after giving birth - that her father carried the gene for Huntington's disease, a degenerative, incurable brain condition. Later she found out she had inherited the gene and that her own daughter, now eight, has a 50% chance of having it.

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