Article 5VH67 I shared details of my brother’s degenerative disease without his consent | Ask Annalisa Barbieri

I shared details of my brother’s degenerative disease without his consent | Ask Annalisa Barbieri

by
Annalisa Barbieri
from Science | The Guardian on (#5VH67)

While you believe your extended family had the right to know about the gene passed on by your late father, that information wasn't yours to share

My dad died two years ago, exposing a sea of secrets and lies. He'd had a degenerative condition, but was totally in denial - and while it was a known excuse for his moods and lack of interest in his family, he did little in his lifestyle to mitigate its effects.

After he died, we discovered there was a dominant gene he could have passed to his children. My brother and I have been tested - my sister does not want to be - and my brother was found to be positive.

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