Article 6RHQ2 Tell us: have you donated your health information to UK Biobank?

Tell us: have you donated your health information to UK Biobank?

by
Guardian community team
from Science | The Guardian on (#6RHQ2)

We would like to hear from people who volunteered for UK Biobank after a possible breach of controls on data

We would like to hear from people who donated their health information to UK Biobank. The Guardian has revealed that a group of race science" researchers claim to have obtained a large" haul of the data UK Biobank holds.

UK Biobank says research using its data must be in the public interest". Angela Saini, author of a book on race science, says: If there have been friendly researchers who have passed them the data that way that's a huge breach of standards and it needs to be investigated by UK Biobank. That's a minimum that everyday people should be able to expect that their data isn't used for nefarious purposes."

We'd also like to hear people's thoughts on how their health data is used, shared, and kept secure.

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