Autopsies Can Reveal Intimate Health Details. Should They be Kept Private?
Arthur T Knackerbracket has processed the following story:
Over the past couple of weeks, I've been following news of the deaths of actor Gene Hackman and his wife, pianist Betsy Arakawa. It was heartbreaking to hear how Arakawa appeared to have died from a rare infection days before her husband, who had advanced Alzheimer's disease and may have struggled to understand what had happened.
But as I watched the medical examiner reveal details of the couple's health, I couldn't help feeling a little uncomfortable. Media reports claim that the couple liked their privacy and had been out of the spotlight for decades. But here I was, on the other side of the Atlantic Ocean, being told what pills Arakawa had in her medicine cabinet, and that Hackman had undergone multiple surgeries.
It made me wonder: Should autopsy reports be kept private? A person's cause of death is public information. But what about other intimate health details that might be revealed in a postmortem examination?
[...] The goal of an autopsy is to discover the cause of a person's death. Autopsy reports, especially those resulting from detailed investigations, often reveal health conditions-conditions that might have been kept private while the person was alive. There are multiple federal and state laws designed to protect individuals' health information. For example, the Health Insurance Portability and Accountability Act (HIPAA) protects "individually identifiable health information" up to 50 years after a person's death. But some things change when a person dies.
For a start, the cause of death will end up on the death certificate. That is public information. The public nature of causes of death is taken for granted these days, says Lauren Solberg, a bioethicist at the University of Florida College of Medicine. It has become a public health statistic. She and her student Brooke Ortiz, who have been researching this topic, are more concerned about other aspects of autopsy results.
The thing is, autopsies can sometimes reveal more than what a person died from. They can also pick up what are known as incidental findings. An examiner might find that a person who died following a covid-19 infection also had another condition. Perhaps that condition was undiagnosed. Maybe it was asymptomatic. That finding wouldn't appear on a death certificate. So who should have access to it?
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