Families organize amid government funding cuts into rare disease research
by editors@theworld.org (Deepa Fernandes) from The World: Latest Stories on (#75JTG)
There have been dramatic cuts to science research grants within the past year. Particularly hard hit: rare disease research, which has always been difficult to fund. But global research collaborations are forging ahead, led by some of the most impacted people. Reporter Deepa Fernandes, whose own daughter has a rare genetic disorder, takes us into the world of Nicolaides-Baraitser syndrome.